
Nick was born with popliteal pterygium syndrome, an extremely rare condition that prevented him from walking the way most kids do. While he faces challenges as a result of having both legs amputated, he maintains a positive outlook and a contagious sense of humor.
Nick will be blogging about his upcoming trip to Capitol Hill on June 17-18 to tell lawmakers about the importance of access to quality specialized care at children's hospitals.
© N.A.C.H. 2007