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Jun 19, 2009

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Nick,
It was so great to get to meet you at our Family Advocacy Day! Thanks for making the trip to DC and for all you did while you were here. I have some great photos of you playing the drums!
Take care of yourself and I hope to see you again someday.
Sharon from N.A.C.H.

Nick,

Scott Rosenbaum (Louise's dad). Really nice write up. Wanted to let you know that we ordered the DVD from the House session. If you are interested we can share it with you, or I can just edit the time you were on the floor and send it over.

Let me know scottr(at)innoventsolutions(dot)com or http://pipebaum.com and leave a comment.

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Nicklas' Story

  • Nick was born with popliteal pterygium syndrome, an extremely rare condition that prevented him from walking the way most kids do. While he faces challenges as a result of having both legs amputated, he maintains a positive outlook and a contagious sense of humor.

    Nick will be blogging about his upcoming trip to Capitol Hill on June 17-18 to tell lawmakers about the importance of access to quality specialized care at children's hospitals.

    Read Nicklas' Story

  • Disclaimer: The views and opinions expressed in individual posts are strictly those of the author(s) and in no way represent those of N.A.C.H. N.A.C.H. assumes no liability for the information therein and extends no implied or expressed warranty or guarantee of accuracy. The receipt of unsolicited ideas by N.A.C.H. does not obligate N.A.C.H. to keep these ideas confidential, nor does it obligate N.A.C.H. to pay the person who submits them.

    © N.A.C.H. 2007

    www.childrenshospitals.net

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