Sean is a fun loving 6-year-old boy who enjoys creative play such as make believe and theatre. He has lots of fun doing this with his three younger siblings. He also likes playing soccer and baseball with family and friends. When Sean’s mother was pregnant, the doctors discovered Sean had cysts on his lungs. After birth he was closely monitored by the doctors. After undergoing a thorough medical examination at Maria Fareri Children’s Hospital at Westchester Medical Center at age 2, Sean was diagnosed with pleural pulmonary blastoma. He underwent chemotherapy, radiation treatment and stem cell transplants. Thanks to Maria Fareri, Sean is in remission now and very much enjoys school and playing with his family and friends.
Sean and his family talk about health care reform at Family Advocacy Day.
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Hi Sean,
My name is Lori Zulla and I work with your Dad. Even though we have not met in person, I feel like I know you already. I've seen so many adorable pictures of you and your brother and sisters gracing the walls of your dad's office. I hope some day soon you can visit us!
My family and I want to wish you well on your journey to Washington, D.C. You are an amazing young boy, reminding all of us of the power of hope and perseverance.
With Love and Prayers,
The Zulla Family
Hi Sean,
My name is Lori Zulla and I work with your Dad. Even though we have never met, I feel like I know you already. I've seen the adorable pictures of you and your brother and sisters gracing the walls of your Dad's office. We want to wish you well on your journey to Washington, D.C. You are an amazing young boy, reminding us all of the power of hope and perseverance.
Sean, Your cousins in Las Vegas wish you the best on your trip and want you to know you and your family are in our prayers daily. Your journey in life thus far is a shining example of faithful endurance and an emblem of God's pefect love. Maybe your next trip will be to Las Vegas! Have fun!!!
Sean you are the Bravest Kid we know! you have been through so so much and you still manage to always have a smile for everyone! Love Michael,Janet,Ryan and Kelly O'Keefe
Dear Sean,
We are constantly amazed by your courage.
We have seen all of the great pictures of you in your costumes, and you are always having such fun. Keep smiling and have fun in Washington.
Love,
Carolyn and Bob Reilly
Dear Sean
I think that you are the greatest little boy I always think of you and how happy you are when I do see you. I keep you in my prayers Have a wonderful time in Washington
Aunt Kay
Hi Sean,
This is your cousin Jean saying hello to you. I haven't seen you in a while, but I think of you every day, say a prayer for you and talk to your Papa Gene often about you. Have a great time in Washington and tell them where it's at!!!! I love you in my heart.
We hope you have great time - Little Eddie and Ryan can't wait to hear all about your trip. You are a terrific, strong, and super-fun little boy!
Love,
The Schluters
Hi Sean,
You don't know me, but I am a friend of you Nanny.
I hope you have a great trip, take lots of picture and make lots of wonderful memories!
So many people that you do not even know, pray for you all the time!
Have the best trip ever!
Hi Sean! It is so wonderful to be with you, your mom and dad, and Michael, Hope and Kiera in Washington. You are an amazing boy and many a super hero could learn from you and your strength! Keep up the great work! Hugs to you!
Mary
You've never met me, but I work with your dad and he is a great guy. Your dad is very lucky to have such a strong, hansome young man as you for a son! Keep on fighting, and also keep on having fun! I hope to meet you soon.
I really enjoyed meeting you and spending time with your family during your trip to D.C. this week! I hope you had a good time too! I wanted to thank you and your family for making the trip and for sharing your story with our legislators! You are doing an important thing to help make sure other kids get to have the chance to receive great health care services like you received. Thanks!
What a great picture of you on your blog! You are a very brave boy and so lucky to have a wonderful Mommy and Daddy. I know you had an exciting trip to Washington, something to treasure for a lifetime. You are a winner and an inspiring example for all children.
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Children's hospital patients and their families are traveling from across the U.S. for the N.A.C.H. Family Advocacy Day, June 17-18, 2009. They will tell Congress about the importance of children's health care coverage and health issues.
This site will feature a different participating child each week until the event.
Leave a comment and cheer on our champions for children's health!
Disclaimer: The views and opinions expressed in individual posts are strictly those of the author(s) and in no way represent those of N.A.C.H. N.A.C.H. assumes no liability for the information therein and extends no implied or expressed warranty or guarantee of accuracy. The receipt of unsolicited ideas by N.A.C.H. does not obligate N.A.C.H. to keep these ideas confidential, nor does it obligate N.A.C.H. to pay the person who submits them.
Hi Sean,
Have a great trip to Washington.
You are the strongest young man we know. Everyone else has said it, but it is so true... you are an inspiration to us all..
Love,
John and Carol Bray
Posted by: John and Carol Bray | June 04, 2009 at 04:30 PM
dear sean,
i love my big brother!
(typed for her but her words!)
love,
HOPE
Posted by: Janine and Dan Callahan | June 05, 2009 at 08:11 AM
Hi Sean,
My name is Lori Zulla and I work with your Dad. Even though we have not met in person, I feel like I know you already. I've seen so many adorable pictures of you and your brother and sisters gracing the walls of your dad's office. I hope some day soon you can visit us!
My family and I want to wish you well on your journey to Washington, D.C. You are an amazing young boy, reminding all of us of the power of hope and perseverance.
With Love and Prayers,
The Zulla Family
Posted by: Lori, Michael, Kristine and Stepanie Zulla | June 06, 2009 at 09:44 PM
Hi Sean,
My name is Lori Zulla and I work with your Dad. Even though we have never met, I feel like I know you already. I've seen the adorable pictures of you and your brother and sisters gracing the walls of your Dad's office. We want to wish you well on your journey to Washington, D.C. You are an amazing young boy, reminding us all of the power of hope and perseverance.
With Love and Prayers,
The Zulla Family
Posted by: Lori, Mike, Kristine and Stephanie Zulla | June 06, 2009 at 09:59 PM
Sean,
You are a strong kid! Your strength and courage helps others and your smiles will brighten up Washington.
I wish you the best always.
Anthony
Posted by: Anthony | June 07, 2009 at 10:50 AM
Sean, Your cousins in Las Vegas wish you the best on your trip and want you to know you and your family are in our prayers daily. Your journey in life thus far is a shining example of faithful endurance and an emblem of God's pefect love. Maybe your next trip will be to Las Vegas! Have fun!!!
Posted by: Pete & Cathy Gigliotti | June 08, 2009 at 10:52 AM
Dear Sean,
You are my hero. Your strength and courage are an inspiration to all of us. May your smile continue to light up our lives.
Love you so much,
Nanny
Posted by: Jean Callahan | June 08, 2009 at 05:31 PM
Sean you are the Bravest Kid we know! you have been through so so much and you still manage to always have a smile for everyone! Love Michael,Janet,Ryan and Kelly O'Keefe
Posted by: Janet Okeefe | June 08, 2009 at 09:22 PM
Dear Sean,
We are constantly amazed by your courage.
We have seen all of the great pictures of you in your costumes, and you are always having such fun. Keep smiling and have fun in Washington.
Love,
Carolyn and Bob Reilly
Posted by: Carolyn Reilly | June 09, 2009 at 08:22 AM
Dear Sean
I think that you are the greatest little boy I always think of you and how happy you are when I do see you. I keep you in my prayers Have a wonderful time in Washington
Aunt Kay
Posted by: Catharine Glynn | June 09, 2009 at 09:58 AM
Hi Sean,
This is your cousin Jean saying hello to you. I haven't seen you in a while, but I think of you every day, say a prayer for you and talk to your Papa Gene often about you. Have a great time in Washington and tell them where it's at!!!! I love you in my heart.
Cousin Jean
Posted by: Jean Keller | June 09, 2009 at 11:35 AM
Hi Sean :0)
We hope you have great time - Little Eddie and Ryan can't wait to hear all about your trip. You are a terrific, strong, and super-fun little boy!
Love,
The Schluters
Posted by: Melissa Schluter | June 09, 2009 at 12:35 PM
Hi Sean,
You don't know me, but I am a friend of you Nanny.
I hope you have a great trip, take lots of picture and make lots of wonderful memories!
So many people that you do not even know, pray for you all the time!
Have the best trip ever!
Love,
Sharon Forman
Posted by: sharon forman | June 10, 2009 at 04:07 PM
Sean, you are a very special child and we are so proud of you. You are always in our prayers. We love you. Enjoy Washington.
Posted by: The Brenners | June 11, 2009 at 05:05 PM
Hey Little Man,
How was your day today? Hope it was full of fun things to do. After all, it was nice and warm today!
Just checking up on you so you don't think we forgot you!
Posted by: Gabriel & Maria Pilar & Shane | June 16, 2009 at 11:15 PM
Hi Sean! It is so wonderful to be with you, your mom and dad, and Michael, Hope and Kiera in Washington. You are an amazing boy and many a super hero could learn from you and your strength! Keep up the great work! Hugs to you!
Mary
Posted by: Mary Delaney | June 17, 2009 at 03:27 PM
Sean,
You've never met me, but I work with your dad and he is a great guy. Your dad is very lucky to have such a strong, hansome young man as you for a son! Keep on fighting, and also keep on having fun! I hope to meet you soon.
Julie Maye
Posted by: Juliana Maye | June 17, 2009 at 07:33 PM
Hey Sean,
Hope you had a great time in Washington. We can't wait to see you again.
Peter, Louise, Ziggy and Calvin
Posted by: Peter Ehrmann | June 19, 2009 at 09:14 PM
Sean -
I really enjoyed meeting you and spending time with your family during your trip to D.C. this week! I hope you had a good time too! I wanted to thank you and your family for making the trip and for sharing your story with our legislators! You are doing an important thing to help make sure other kids get to have the chance to receive great health care services like you received. Thanks!
Posted by: Stacy Biddinger | June 19, 2009 at 10:53 PM
Dear Sean,
What a great picture of you on your blog! You are a very brave boy and so lucky to have a wonderful Mommy and Daddy. I know you had an exciting trip to Washington, something to treasure for a lifetime. You are a winner and an inspiring example for all children.
Love,
Nanny's Friend, Jeanne
Posted by: Jeanne Earle | July 07, 2009 at 09:56 AM