Rebekah is a sweet 4-year-old who loves school, being outdoors, horseback riding and Dora the Explorer. Rebekah was born about seven weeks early, weighing only 4 pounds, 6 ounces. When she left the hospital three days later, her weight had dropped to 4 pounds. Rebekah’s low muscle tone causes her difficulty in eating and to tire easily. Early intervention services have offered physical, occupational and speech therapy that have been helpful to Rebekah. She continues to receive treatment through Johnston Public Schools and Greenlock Therapeutic Riding Center in Rehoboth, MA. Children’s Hospital Boston has offered Rebekah’s family hope in receiving medical treatment and not giving up. Every blood work test that comes back normal is one more step toward learning what Rebekah is facing.
Rebekah and her family talk about health care reform at Family Advocacy Day.
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Rebekah, I hope this finds you doing well and playing and enjoying the summer like any other 4year old. I hope your recovery is complete and your worst days are behind you and nothing but the best days ahead.
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Children's hospital patients and their families are traveling from across the U.S. for the N.A.C.H. Family Advocacy Day, June 17-18, 2009. They will tell Congress about the importance of children's health care coverage and health issues.
This site will feature a different participating child each week until the event.
Leave a comment and cheer on our champions for children's health!
Disclaimer: The views and opinions expressed in individual posts are strictly those of the author(s) and in no way represent those of N.A.C.H. N.A.C.H. assumes no liability for the information therein and extends no implied or expressed warranty or guarantee of accuracy. The receipt of unsolicited ideas by N.A.C.H. does not obligate N.A.C.H. to keep these ideas confidential, nor does it obligate N.A.C.H. to pay the person who submits them.
Rebekah, I hope this finds you doing well and playing and enjoying the summer like any other 4year old. I hope your recovery is complete and your worst days are behind you and nothing but the best days ahead.
Posted by: Kevin Mueller | June 16, 2009 at 02:19 PM