Rebekah is a sweet 4-year-old who loves school, being outdoors, horseback riding and Dora the Explorer. Rebekah was born about seven weeks early, weighing only 4 pounds, 6 ounces. When she left the hospital three days later, her weight had dropped to 4 pounds. Rebekah’s low muscle tone causes her difficulty in eating and to tire easily. Early intervention services have offered physical, occupational and speech therapy that have been helpful to Rebekah. She continues to receive treatment through Johnston Public Schools and Greenlock Therapeutic Riding Center in Rehoboth, MA. Children’s Hospital Boston has offered Rebekah’s family hope in receiving medical treatment and not giving up. Every blood work test that comes back normal is one more step toward learning what Rebekah is facing.
Rebekah and her family talk about health care reform at Family Advocacy Day.