Jakob is an adorable and energetic 3-year-old boy who first visited Children’s Hospital Boston when he was only a few hours old. He was born with a bilateral complete cleft lip and palate but was rushed to Boston just after his birth in New Hampshire because of an emergency breathing problem, pneumothorax, that his birth hospital was not equipped to handle. Jakob remained at Children’s in the NICU for only a few days, but would return to the hospital for cleft lip and palate repair surgery three times before his first birthday. His longest surgical procedure was the one-stage repair of his lip, nose and gums which lasted 11 hours. Jakob also has had some trouble with his ears and went through two sets of tubes to get his chronic ear infections under control. He has only a very mild speech delay today and will return to Children’s for one more surgical procedure when he is a little older. A piece of bone from his hip will be used to reinforce the repair of his upper jaw. Jakob loves playgrounds and trains.
Jakob's parents talk about health care reform at Family Advocacy Day.
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Children's hospital patients and their families are traveling from across the U.S. for the N.A.C.H. Family Advocacy Day, June 17-18, 2009. They will tell Congress about the importance of children's health care coverage and health issues.
This site will feature a different participating child each week until the event.
Leave a comment and cheer on our champions for children's health!
Disclaimer: The views and opinions expressed in individual posts are strictly those of the author(s) and in no way represent those of N.A.C.H. N.A.C.H. assumes no liability for the information therein and extends no implied or expressed warranty or guarantee of accuracy. The receipt of unsolicited ideas by N.A.C.H. does not obligate N.A.C.H. to keep these ideas confidential, nor does it obligate N.A.C.H. to pay the person who submits them.
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