Caroline is a beautiful and spirited 22-month-old girl who was born with a unilateral complete cleft lip and palate. Her older brother Jakob and father were also born with cleft lip and palate, so the family is taking part in a genetic study through Children’s Hospital Boston to determine whether or not a genetic syndrome runs in their family. Caroline underwent four surgeries to repair the cleft lip and palate at Children’s during her first year of life and also had ear tubes placed in her ears. At each step along the way, things could not have gone more smoothly for Caroline. Today, she continues to do extremely well, with no speech or eating problems. Caroline is very fond of her dolls and pretty quick on her feet, probably from always trying to keep up with her older brother.
Caroline's parents talk about health care reform at Family Advocacy Day.
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Children's hospital patients and their families are traveling from across the U.S. for the N.A.C.H. Family Advocacy Day, June 17-18, 2009. They will tell Congress about the importance of children's health care coverage and health issues.
This site will feature a different participating child each week until the event.
Leave a comment and cheer on our champions for children's health!
Disclaimer: The views and opinions expressed in individual posts are strictly those of the author(s) and in no way represent those of N.A.C.H. N.A.C.H. assumes no liability for the information therein and extends no implied or expressed warranty or guarantee of accuracy. The receipt of unsolicited ideas by N.A.C.H. does not obligate N.A.C.H. to keep these ideas confidential, nor does it obligate N.A.C.H. to pay the person who submits them.
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