Alyson and Andrea, 8 year-old identical twins, juggle a full schedule of activities – softball, junior varsity jump rope, bike riding, swimming, reading, and singing in their church choir. Somehow, the girls must find at least an hour each day for a treatment machine they call “Tigger” that pounds their chests clear of mucus, taking nebulizer treatments, and swallowing 20 some pills each. Alyson and Andrea do these things because they have been living with the genetic disease cystic fibrosis since birth. From the time of diagnosis, the family has felt a part of the team with the Pulmonary Unit at Nationwide Children’s Hospital. What their parents like best about the girls’ care is the emphasis on prevention through nutrition, medication, and other cutting-edge therapies. Through the help of Nationwide Children’s Hospital proactive care and treatment, coupled with the strength and support of their loving family, Alyson and Andrea are able to live longer, stronger lives.
Alyson and Andrea and their dad talk about health care reform at Family Advocacy Day.