Alyson and Andrea, 8 year-old identical twins, juggle a full schedule of activities – softball, junior varsity jump rope, bike riding, swimming, reading, and singing in their church choir. Somehow, the girls must find at least an hour each day for a treatment machine they call “Tigger” that pounds their chests clear of mucus, taking nebulizer treatments, and swallowing 20 some pills each. Alyson and Andrea do these things because they have been living with the genetic disease cystic fibrosis since birth. From the time of diagnosis, the family has felt a part of the team with the Pulmonary Unit at Nationwide Children’s Hospital. What their parents like best about the girls’ care is the emphasis on prevention through nutrition, medication, and other cutting-edge therapies. Through the help of Nationwide Children’s Hospital proactive care and treatment, coupled with the strength and support of their loving family, Alyson and Andrea are able to live longer, stronger lives.
Alyson and Andrea and their dad talk about health care reform at Family Advocacy Day.
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Children's hospital patients and their families are traveling from across the U.S. for the N.A.C.H. Family Advocacy Day, June 17-18, 2009. They will tell Congress about the importance of children's health care coverage and health issues.
This site will feature a different participating child each week until the event.
Leave a comment and cheer on our champions for children's health!
Disclaimer: The views and opinions expressed in individual posts are strictly those of the author(s) and in no way represent those of N.A.C.H. N.A.C.H. assumes no liability for the information therein and extends no implied or expressed warranty or guarantee of accuracy. The receipt of unsolicited ideas by N.A.C.H. does not obligate N.A.C.H. to keep these ideas confidential, nor does it obligate N.A.C.H. to pay the person who submits them.
The Hoffman Family ROCKS!!
Posted by: Mary Wetterauer | June 01, 2009 at 04:48 PM
We're proud of you girls!
Posted by: Chip Cooper | June 01, 2009 at 08:50 PM
Wow! You guys are awesome!
Say hi to the Obamas for us.
Posted by: Val Knapp | June 02, 2009 at 10:34 AM
Totally ADORABLE picture! Keep up the great work you're doing for children's health issues. You go girls!!!!!
Posted by: Carole and Bill Lee | June 08, 2009 at 09:39 PM
you girls are beautiful and the Hoffman family is inspiring!
Posted by: Holly Hollenbaugh | June 09, 2009 at 10:05 PM
Good luck this week, and have fun! Thank you for being an advocate for children with Cystic Fibrosis!
Posted by: sdaubert | June 16, 2009 at 08:20 AM
Andie and Ally: Show Washington "what's happening"!!! You are OUR heroes!!! Have fun...
Posted by: Judy and Dan Kiger | June 16, 2009 at 05:33 PM
You are doing a great job, Aly and Andie! Keep up the great work, girls! Love, Mrs. D
Posted by: Natalie Despetorich | June 18, 2009 at 03:38 PM
Thanks for caring about all of God's children! We love you Alyson and Andrea!
Hugs and Kisses,
Kara and Colton Ross
Posted by: Kara Ross | June 22, 2009 at 01:13 PM