Shane was a perfectly healthy baby boy until the day he began having violent convulsions at just 4 months old. The convulsions rapidly increased in frequency and intensity until Shane—unable to breathe properly—lost consciousness. After several misdiagnoses and many invasive tests, he was admitted to Le Bonheur Children’s Hospital’s Neuroscience Institute where the doctors immediately diagnosed him with infantile spasms, a rare form of epilepsy. Within hours of his diagnosis, Shane was placed on drug therapy and his spasms calmed. A year later, Shane suffered complications from a routine surgical procedure at another medical facility and was airlifted back to the hospital’s pediatric intensive care unit. Le Bonheur saved and maintained the quality of Shane’s life not once, but twice. Shane is now a happy, healthy 5-year-old who enjoys golf, karate and math.
« Meet Franchesca P., Brooklyn, NY | Main | Meet Ally G., Mahtomedi, MN »
07/01/2011
Comments
You can follow this conversation by subscribing to the comment feed for this post.
Verify your Comment
Previewing your Comment
This is only a preview. Your comment has not yet been posted.
Your comment could not be posted. Error type:
Your comment has been saved. Comments are moderated and will not appear until approved by the author. Post another comment
As a final step before posting your comment, enter the letters and numbers you see in the image below. This prevents automated programs from posting comments.
Having trouble reading this image? View an alternate.
2011 FAD Twitter Feed
Cheer on the All-stars
Children's hospital patients and their families are traveling from across the U.S. for the N.A.C.H. Family Advocacy Day, July 25-26, 2011. They will tell Congress about the importance of children's health care coverage and health issues. This site will feature a different participating child each week until the event. Leave a comment and cheer on our All-stars for children's health!
About N.A.C.H. Family Advocacy Day
- In its seventh year, N.A.C.H. 2011 Family Advocacy Day brings patients from children's hospitals and their families to tell their stories to lawmakers on Capitol Hill. Find out more about Family Advocacy Day.
- Disclaimer: The views and opinions expressed in individual posts are strictly those of the author(s) and in no way represent those of N.A.C.H. N.A.C.H. assumes no liability for the information therein and extends no implied or expressed warranty or guarantee of accuracy. The receipt of unsolicited ideas by N.A.C.H. does not obligate N.A.C.H. to keep these ideas confidential, nor does it obligate N.A.C.H. to pay the person who submits them.
© N.A.C.H. 2007
Hi Shane,
Hope you're excited for your trip to DC. We're excited to have you joining us and can't wait to meet you.
Justin, National Association of Children's Hospitals
Posted by: Justin Beland | 07/17/2011 at 11:29 PM