Kylie is a lively and lovable 16-month-old girl who is irresistibly stubborn and set in her ways. Born with numerous medical complications that left her local doctors puzzled, her parents brought her to Children’s Hospital Boston, where they diagnosed her with CHARGE syndrome and sleep apnea. CHARGE syndrome is an incredibly complex genetic condition that causes difficulties with feeding, walking and communication, and has left Kylie deaf and legally blind. The care she receives from her team of specialists at Children’s makes it possible for her to overcome obstacles and progress in ways that her family, friends and doctors never imagined. Kylie’s favorite activities are spinning, kicking, swimming, jumping and pretty much anything else that involves action.