Connor is an energetic and adventurous 9-year-old who was born with a cloverleaf skull and an Arnold-Chiari type 1 malformation, a condition that can cause severe neurologic and cognitive defects. He spent the first two months of his life in the NICU at All Children’s Hospital, where his expert care included having a tracheostomy tube placed, receiving a shunt and having the first of several craniotomies to expand his skull. Later he was also diagnosed with Crouzen syndrome and cerebral palsy. He has endured 30 surgeries—most of them at All Children’s Hospital—where he continues his regimen of physical and speech therapy. Connor just completed second grade at Shore Acres Elementary where he is fully included in a regular classroom. He also loves being a Cub Scout with Pack 280.
Please send a message to Connor our ACH star who will be attending Family Advocacy day later this month!#ach
Posted by: Cindyroseach | 07/08/2011 at 06:02 PM
Hi Connor,
Can't wait to meet you here in Washington, DC! I know you'll have a great time at Family Advocacy Day.
Justin, National Association of Children's Hospitals
Posted by: Justin Beland | 07/12/2011 at 10:17 PM
Way to go Connor! We are so excited and honored to see you going to Washington DC. You are our "all star"!
Posted by: Tina VanderBeek | 07/13/2011 at 04:24 PM
Connor brightens my day each time he presents to the Admissions office for registration. His smile warms my heart. You can see how loved he is by his expressions and loving ways. Bless you all and have a wonderful visit in D.C.. My prayers and thoughts will be with all of you.
Nancy Hubbs
Admissions Coordinator
ACH
Posted by: NANCY | 07/13/2011 at 06:24 PM
Connor, you inspire me everyday. I'm so proud of you! Your amazing spirit makes me soar. Love and Mommy kisses!!!
Posted by: Kerry Carlisle | 07/14/2011 at 02:31 AM
Connor, my awesome grandson - your smile will energize everyone! You are so truly inspiring to Papa and me. You have always been an "All Star" with us and now everyone will recognize just how special you are! Love, hugs and kisses, Nana and Papa
Posted by: Ruth Young | 07/14/2011 at 10:29 AM
Have a great time in Washington Connor! Can't wait to read about all your adventures in DC when you get back. All My Best, Donna Madden
Posted by: donna madden | 07/14/2011 at 10:51 AM
Dear Connor, we are so proud of you! It is always a joy to see you and your family. Have a wonderful time in Wash DC, You will always be a star!!! Love, Nancy & Aurelio and The Sica Family
Posted by: Nancy Sica | 07/14/2011 at 11:11 AM
Hey Connor! We always knew you were an awesome nephew and cousin, but now you are officially an All Star! We hope your visit in DC is fun and rewarding. You show them all what good stuff the Carlisle's are made of! We love you! Love, FJ, Susan & Aiden
Posted by: Susan Carlisle | 07/14/2011 at 11:40 AM
Congratulations Connor I am so proud of yu. You have a wonderful time in DC and show them all just how great you really are. I love you and so proud of you. Love Aunt Sue Bresadola.
Posted by: Susan Bresadola | 07/14/2011 at 01:45 PM
Hello Connor! My name is Gaudi and I work with your Grandma Ruthy. I am so proud of you, enjoy DC with your family and friends
love,
Gaudi
Posted by: Gaudi DePedro | 07/14/2011 at 03:37 PM
Go, Connor! Go, Connor! We love you and we hope you have a great time in D.C.!
Love, Aunt Sarah, Uncle Mark, Anna Lisa and Jack
Posted by: Sarah and Mark Pflaum | 07/15/2011 at 10:08 AM
Go Connor!! Have a great time!! You are a remarkable kid with a great family!!
Love,
Bo, Abbie, Shannon & Mica
Posted by: Shannon Anderson | 07/15/2011 at 05:10 PM
Deas Connor,
I still have your first birthday picture on my fridge. I am so proud to know you and your family.
Love,
nurse Christy
Posted by: christy janssen | 07/16/2011 at 02:00 PM
Conner I have seen you grow and overcome so many obstacles. You are a fighter and your story is truly an inspiration!! It is an honor to know you and your family. Good luck and have a safe trip.
From your long time nurse Angela.
Posted by: Angela Heath | 07/18/2011 at 01:15 AM
Connor,
Way to go, they will be better individuals just by meeting and getting to know you. Have a great time. Can't wait to see you in a few weeks.
Aunt Kathi and Uncle Jody
Posted by: Kathi Exner | 07/18/2011 at 10:56 AM
Connor! Way to go buddy! You inspire me everyday with your strenght and courage! Show them what you go kiddo! Have a great time in DC. So much to see! Love, Ashley & Steven Mellone (Exner)
Posted by: Ashley Mellone | 07/18/2011 at 01:58 PM
Connor, I hope that you and your family have a great trip to Washington D.C. I am very proud of you and can't wait to hear all about your trip when you return. Maggie
Posted by: Maggie Reilly | 07/18/2011 at 10:33 PM
Connor,
Whenever you visit your Grandma here at her office, your energetic and joyful spirit shines and you bring a smile to all of us. Have a great trip filled with wonder and joy.
Gary
Posted by: Gary Heil | 07/19/2011 at 09:13 AM
Hi Connor, Uncle Brown and Aunt Penny just want to tell you how much we love you and how you have made our lives so much happier and better just because you just in it. We hope to see you at the farm again soon. We love your smile and your sweet disposition.
xxxxoooo
Posted by: Aunt Penny Lowe Stegall | 07/20/2011 at 04:41 PM
Go Connor!!! Can't wait to see you all at next year's picnic! =D
-Casey
Posted by: Casey Deakins | 07/20/2011 at 10:20 PM
Hi Connor
We're so excited for you and your family and your big adventure to Washington DC. Hope it's not too hot. Disappointed that you won't be coming a little further north to Philly, but we'll see you soon. We had such a great time with you and Reid.
Have a great time in DC and tell those politicians to make some decisions!
Love, Mary, Dave, Caty and Ryan
Posted by: Mary Savage | 07/20/2011 at 10:52 PM
Congratulations Connor! Have a great time in DC! We are all so proud of you! Hope you can make it to Colorado for a visit sometime!
Stephanie, Jim, Austin & Conner
Posted by: Stephanie Piko | 07/21/2011 at 12:15 AM
Connor I am so thrilled for you! You are going to be a great representative in Washington! You tell them what the children need Connor, I'm sure you will be very convincing!
I always look forward to seeing you in the morning at school. We're always the first to get there in the morning. :) I hope your enjoying your summer and I hope this trip to our Capitol is a wonderful adventure for the whole family!
Posted by: Linda Nelson - SAE PTA President | 07/21/2011 at 08:01 AM
Good Luck Connor! You are very brave to go to congress. See you back a Cub Scouts! Your Friend, Ashton Raymer
Posted by: Ashton Raymer | 07/21/2011 at 08:11 AM